JennyDaniella
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I live in a pretty Republican state lol, Arizona to be exact. It's alright--- but it could definitely be waaaaaaay better.
The Lack of Affordable Healthcare in the US
- Thread starter Skarekrow
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- healthcare obamacare trumpcare
I live in a pretty Republican state lol, Arizona to be exact. It's alright--- but it could definitely be waaaaaaay better.
Roses In The Vineyard
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The older I get the more I realize that I am not only incompatible but also obsolete to how this country truly is and what it expects of people. If you are an hsp/empath you're fucked in this country and while the same is true for other nations it needs to be better but I don't see that changing anytime soon. Just can't take it anymore.
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Just start speaking your truth, you've got nothing to lose and maybe you'll change some minds. Ripple effect and all that.
Skarekrow
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Just as you and @Wyote suggest, I feel that more and more people here are feeling this way.
It seems that it was partially expressed in the House election with what is by far the most diverse group of Congresspeople yet.
When compared to the party of the old white man controlling the Senate, folks like Mitch McConnell and crew...then you have the even worse group of the so-called “freedom caucus” who are bent on tearing down the government, not building a better one and a better country.
The institutional racism, the lack of affordability for not just necessities like food and healthcare and housing, but just about everything...all while the ideals of Reganomics are still being endorsed and encouraged, and wages have stagnated ever since.
People on disability are having their payments garnished for student loan debt, forcing many out into the street.
Same goes with tax returns this year...if you thought you were gonna get $8000 back but owe student loans they have been seizing it even with those who are supposedly up to date on their payments. BS.
Yet there are trillions of dollars sitting in offshore illegal accounts...or those like Amazon who very blatantly make billions in profits yet pay NOTHING in taxes...and then we can’t fund our schools?
It’s high past time that the people force those who WE elect to do what their job duties entail.
We need to get the super PACs and the big money lobbyists out of the law making process.
We need outside ethical review boards with teeth for our politicians as they police themselves right now, and that does not, nor has ever worked.
Outside non-partisan board to draw district boundaries...no more BS gerrymandering.
No more BS “voter ID” laws and tactics specifically aimed at suppressing the voting rights of certain groups of people in this country.
The money needs to be stripped from the US political system.
Keep the faith man.
Roses In The Vineyard
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It all comes down to how many people have to be the bodies under the bus before society takes notice let alone decides to care after all this is a country that for the most part is still controlled by the boomers.
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Sure, I was just talking about you and your personal actions though
Roses In The Vineyard
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Its a suicide mission really, just go full throttle with afterburner and be damned. Not much one person can do other than making some noise on the net.
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That's where you're wrong buddy
Skarekrow
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It’s pretty easy to feel helpless these days.
It seems pretty hopeless at times.
But it is that very discomfort that will have more and more people calling for it to be alleviated.
The Boomers are on the edge of losing power once and for all.
Just keep on going...
It seems pretty hopeless at times.
But it is that very discomfort that will have more and more people calling for it to be alleviated.
The Boomers are on the edge of losing power once and for all.
Just keep on going...
Skarekrow
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This is infuriating.
May she find her peace now.
RIP
On Sunday, long-time disability rights activist and attorney Carrie Ann Lucas died from complications from an infection after she went into cardiac arrest, which resulted, according to her friends and family, from her insurance company’s denial of a necessary medication.
She was 47.
Lucas, who had a rare form of muscular dystrophy and used a wheelchair as well as a ventilator, spent her life fighting for the rights of people with disabilities, from working to expand and protect the rights of parents with disabilities to advocating for increased health care access.
She grew up in Windsor, Colorado and was a teacher and a pastor before becoming a lawyer.
She founded the group Disabled Parents Rights, with the goal of assisting parents with disabilities, work that was informed by discrimination she experienced when she attempted to go through the adoption process.
She also fought against passing physician-assisted suicide laws.
In 2017, as a member of the disability rights group ADAPT, she was one of several people with disabilities who were arrested during a sit-in held in protest of Republicans’ planned cuts to Medicaid.
A February 24 post on her Facebook page states that Lucas “died after an arbitrary denial from an insurance company caused a plethora of health problems, exacerbating her disabilities and eventually leading to her premature death.” More details from the post:
Because Carrie Ann worked for the state, she had use state insurance which was primary ahead of her Medicare and Medicaid.
In January of 2018 she got a cold which turned into a trach and lung infection.
Her insurance company UnitedHealthcare, refused to pay for the one specific inhaled antibiotic that she really needed.
She had to take a less effective drug and had a bad reaction to that drug.
This created a cascade of problems, loss of function (including her speech).
United Healthcare’s attempt to save $2,000 cost over $1 million in health care costs over the past year.
This includes numerous hospitalizations, always involving the Intensive Care Unit which is par for the course for ventilator users.
In her final blog post from January, Lucas wrote about the impact of spending a significant portion of the past year in the hospital:
In the last nine months, I’ve spent a total of eight weeks in the hospital.
Some hospitalizations were shorter, 2 and 3 days, and over a weekend.
Others have been longer 8-, 9- and 10-day long grinds like this one.
In these nine months, I left one hospital against medical advice to transfer myself to another hospital because of inadequate care, acquired additional infections from the hospital, and suffered more medical mistakes than I can count.
...
When confronted with these realities time and time again during hospitalizations, the trauma builds.
One can only be told you are incorrect, only to have someone come back later and confirm you were correct so many times.
One can only correct medical mistakes so many times.
One can only handle the disruption in any sort of routine so long.
The loss of autonomy and uncertainty in the hospital is trauma inducing.
Each hospitalization is worse because I have not had enough time between hospitalizations to allow my emotions to recover.
This trauma is unacknowledged by physicians, and they fail to understand how their actions and patterns are creating trauma which simply exacerbates the situation.
Instead we patients are left in a puddle of tears with few tools to help ourselves because we have no control, and face only uncertainty.
In a remembrance from the Civil Rights Education and Enforcement Center, which gave Lucas an award in 2016, the group wrote:
“Carrie may have been the only wheelchair-using Latina with a bumper sticker reading ‘just another disabled lesbian for Christ,’ dressed in camo, driving her trak-chair into the wilderness in search of the perfect photo.” The group added: “We are very grateful for all Carrie has taught us about disability rights and intersectionality, and for being a brilliant and hilarious colleague and friend.”
Lucas is survived by her four adopted children and her partner Dr. Kimberley Jackson.
“She was an amazing person who dedicated her whole life to helping other people and I just miss her so much and so will the disability community,”
Jackson told the Coloradoan. “We have a similar disability and she understood me like no one has before.”
May she find her peace now.
RIP
On Sunday, long-time disability rights activist and attorney Carrie Ann Lucas died from complications from an infection after she went into cardiac arrest, which resulted, according to her friends and family, from her insurance company’s denial of a necessary medication.
She was 47.
Lucas, who had a rare form of muscular dystrophy and used a wheelchair as well as a ventilator, spent her life fighting for the rights of people with disabilities, from working to expand and protect the rights of parents with disabilities to advocating for increased health care access.
She grew up in Windsor, Colorado and was a teacher and a pastor before becoming a lawyer.
She founded the group Disabled Parents Rights, with the goal of assisting parents with disabilities, work that was informed by discrimination she experienced when she attempted to go through the adoption process.
She also fought against passing physician-assisted suicide laws.
In 2017, as a member of the disability rights group ADAPT, she was one of several people with disabilities who were arrested during a sit-in held in protest of Republicans’ planned cuts to Medicaid.
A February 24 post on her Facebook page states that Lucas “died after an arbitrary denial from an insurance company caused a plethora of health problems, exacerbating her disabilities and eventually leading to her premature death.” More details from the post:
Because Carrie Ann worked for the state, she had use state insurance which was primary ahead of her Medicare and Medicaid.
In January of 2018 she got a cold which turned into a trach and lung infection.
Her insurance company UnitedHealthcare, refused to pay for the one specific inhaled antibiotic that she really needed.
She had to take a less effective drug and had a bad reaction to that drug.
This created a cascade of problems, loss of function (including her speech).
United Healthcare’s attempt to save $2,000 cost over $1 million in health care costs over the past year.
This includes numerous hospitalizations, always involving the Intensive Care Unit which is par for the course for ventilator users.
In her final blog post from January, Lucas wrote about the impact of spending a significant portion of the past year in the hospital:
In the last nine months, I’ve spent a total of eight weeks in the hospital.
Some hospitalizations were shorter, 2 and 3 days, and over a weekend.
Others have been longer 8-, 9- and 10-day long grinds like this one.
In these nine months, I left one hospital against medical advice to transfer myself to another hospital because of inadequate care, acquired additional infections from the hospital, and suffered more medical mistakes than I can count.
...
When confronted with these realities time and time again during hospitalizations, the trauma builds.
One can only be told you are incorrect, only to have someone come back later and confirm you were correct so many times.
One can only correct medical mistakes so many times.
One can only handle the disruption in any sort of routine so long.
The loss of autonomy and uncertainty in the hospital is trauma inducing.
Each hospitalization is worse because I have not had enough time between hospitalizations to allow my emotions to recover.
This trauma is unacknowledged by physicians, and they fail to understand how their actions and patterns are creating trauma which simply exacerbates the situation.
Instead we patients are left in a puddle of tears with few tools to help ourselves because we have no control, and face only uncertainty.
______________________________________________________________________________________
In a remembrance from the Civil Rights Education and Enforcement Center, which gave Lucas an award in 2016, the group wrote:
“Carrie may have been the only wheelchair-using Latina with a bumper sticker reading ‘just another disabled lesbian for Christ,’ dressed in camo, driving her trak-chair into the wilderness in search of the perfect photo.” The group added: “We are very grateful for all Carrie has taught us about disability rights and intersectionality, and for being a brilliant and hilarious colleague and friend.”
Lucas is survived by her four adopted children and her partner Dr. Kimberley Jackson.
“She was an amazing person who dedicated her whole life to helping other people and I just miss her so much and so will the disability community,”
Jackson told the Coloradoan. “We have a similar disability and she understood me like no one has before.”