I worry more about your and your husband’s focus on the aspects of your condition that are “disabilities” rather than preserving life sustaining “abilities”. This is both mental and physical. I say this from a personal experience. I had a catastrophic accident rock climbing many years ago. I shouldn’t have survived, shouldn’t be able to walk and by all rights was told I would lose my left hand. None of those things happened because of something my main surgeon said as I was being discharged from the hospital after 6 months- I was in a wheelchair and partially paralyzed at the time. He said in response to my questions about prognosis for future, “We have repaired everything we can, your prognosis from here is up to you. What you push yourself to develop, how you push preserving function. If you give in to this- you will never leave that chair.” (Summary of conversation). Today I have full use of left hand and I was out of that chair so fast it blinded people with worry. Lots of people that loved me worried and worried and worried. They had that right. I did fall. I did take risks and pushed my spine and healing bones.
I am not saying you have the same situation and can reverse where you are, I am saying that it really is up to you to preserve the best of your life and what you can do to live it fully. People are going to worry and that is hard to reconcile sometimes. People will feel like they are protecting you from a possible danger and not understanding they are pushing you to adopt a far more life sapping situation. Yes, it does feel selfish. But it is equally selfish for others to allow their worry pressure you and take even more from you . In essence truncating your power over yourself and life.
A wheelchair can be a cage if you let it. But it’s an illusion. There are very practical limitations, yes- but most of what people will tell you that you can no longer have- is an illusion. Kayaking had risk before the wheelchair as
@Deleted member 16771 has said. Now it is more challenging, but those challenges can be mitigated. You deserve to live.
Like others have said, find the safest way to mitigate the Kayak. Find a friend to go with you if you need to. Wear a specialized life vest. Do what you need to do except for letting ANYONE take more away from you. Do not give in on this.